Disneyworld

Wednesday, October 23, 2019

A long-ago planned trip to Disney World almost didn't happen because of my suddenly scheduled surgery.  But, after a lot of careful thought and an o.k. from my surgeon, we decided that we simply must keep our plans.   Since Nana and Grampa were coming with us, the girls would have someone to ride the faster, bumpier rides that I was not allowed on, and for the fastest, they could just ride alone.  And I would get some much needed fresh air.

Thursday, just after noon, I gathered both girls from school and headed up the coast.  We were walking through the Hollywood studios arches before 4:30 pm and spent some time riding the Rock 'N Roller Coaster, wandering through the new Star Wars area (didn't ride the rides as I couldn't) and had a quick dinner before heading out to rest up for Friday.









The next morning we were off bright and early as we were hitting up the Food and Wine Festival at Epcot.  First stop, getting the girls Hide and Squeak game (which we played last year also).  This is where they have to go to 15 different locations and find where Remy is hiding.  Once they find them all, they turn in their cards for a prize.  This year, they got official Disney water tumblers.  And while we were all searching for Remy, we also did what we really came for - ate our way around the world.



Pulled Pork Poutine from Canada.





Mini cupcakes from Norway (Frozen themed) and a Frozen Mezzo Mix from Germany (her favorite).  We also had sausages (Germany), Tacos (Mexico), Cheese filled pastries (Carribean), and various other snacks I just forgot to take pictures of...




A quick stop to chat with Mary Poppins.


And we finished just in time for dinner in France!
Another fabulous day at Epcot.  That ended in pouring down rain.  Thankfully we were already home by then.  But the rain continued into the morning, so we switched up our plans.  We had been headed to the Magic Kingdom, but with it raining cats and dogs, we figured it would be better to take it slow and head off to the Animal Kingdom instead.  

Fast passes all switched; we made it to the park at the crack of 11.

One perfectly placed bow on her shirt!

And I even ran into my college roommate!  Who I have not seen in almost 20 years!!!!

The rain did let up (only sprinkled a few times), but the day did stay overcast and gray.  Which was fine with me because it was still hot.

Lunch included Chilean wine flights - with wines that I have not been able to source outside of Chile but are some of our favorites.  Trust me on that, Sauvignon!


We pet a bunch of animals at the Conservation Station.

And then tried our hands at drawing like the pros - 

Stinkerbell's

Nana's

Grampa's

MadHatter's
Mine

And what it was supposed to look like.  I think we did just great.

And after that, we were off to ride some rides (Avatar, Dinosaur, Expedition Everest) and head home to rest up for our final day at the Magic Kingdom.






Sunny and blue skies all day.  So thankful we switched days as the Magic Kingdom is and always will be my favorite park!








And with that, we called it a trip and headed back home, happy and tired and a bit Disneyed out.  Until next time Walt and Friends.
















School Photos

Monday, October 21, 2019

I have such a love/hate relationship with the yearly school photo.  Well, maybe love is too strong of a word, it's more of a resigned relationship.  

Because I started collecting the yearly picture when the girls were in Kindergarten, and I wanted to have a complete set for them when they graduated from high school, I am kind of stuck paying for the picture each year.  Which is never cheap.  And suddenly needs to be paid for BEFORE the shutter is even snapped.  How, in the name of all that is sacred, can anyone decide whether they want a photo before it is even snapped?  Especially since they only take 1!

But I have resigned myself to the fact that this is just one of those things I will do for the next couple of years.  And someday, I may actually be surprised by a really fabulous photo.  This was not the year.  Don't get me wrong.  My girls are incredible, and they usually photograph well - just not when they have .0001 seconds to put themselves together after a full day of school.  Who would?  And this one of MadHatter... 


She was mid-blink when they took it (and that frizzy hair).  But there are no second shots, and now she has to wear this photo on her lanyard ID for the next year.  She is not pleased about it, but she does find it sort of humorous.  And the fact that no one else's is really any better makes it ok.

Stinkerbell fared a little better in the hair and not blinking department.  But if they could just get her to not make the crazy Jack Nicholson face, I would love it.


Tune-up Time

Thursday, October 17, 2019

***Warning***
This post contains images of bruising and my surgery incision with steristips.  Skip the photos if you are squeamish.  They are not graphic, but they are a bit icky.

I have had a pacemaker for just over 12 years now.  I know I am too young to have one.  Everyone tells me that, but when you have a 2nd-degree heart block, it is a necessity.  Granted, I only use it on occasion, but when it is needed, I am glad it is there.

About 6 months ago, I went into my cardiologist's office for its quarterly download.  This is where the doctor reads the activity from the past 3 months (yep, it records every single heartbeat - or missed heartbeat in my case) and makes sure that everything is working as it should.  At this appointment, I thought they would tell me that the battery was finally ready to be replaced (they can't do it before it is almost at 0% life due to insurance reasons and we had been at just under 5% last time) instead they told me that my ventricular lead was failing.  Now, instead of just popping out the battery pack and hooking a new one up, I was looking at a much more invasive surgery with a longer recovery time and a meeting with a specialist in the area of lead removals.  Off I went to meet another new doctor where he confirmed that indeed, the lead was almost non-functioning at this point.  And because I was so young, he couldn't just leave the lead in place and add a new one.  Nope, I was in the lucky 2% who would need to have the leads taken out and replaced.  I always seem to beat the medical odds...

We scheduled the surgery for after my trip to Europe this summer as I would need some downtime after the procedure, and flying to Europe was not in the recovery plan.  And then we had to reschedule it again due to MadHatter's trip to the Jr. Olympics.  And then, we had to reschedule for the final time because my surgeon left his practice and was setting up a new office and had to wait until that was all up and running.  Finally, the stars and the moon aligned, and they called me with my surgery date - 10 days away. Almost 6 months, it was suddenly next week!

Nana and  Grampa came over the night before, which just happened to be Grampa's birthday.  We had a lovely celebration and a final meal for me before I had to stop all eating and drinking.  

The next morning we dropped both girls at school and came home through this...  


 I thought it was a nice touch before going into surgery.  

With my check-in time set for 11:30, we had some time to kill, so Grampa and I set up for some painting downstairs.  And then I got the call asking if I could come in and be there by 10:30 so I had to scramble a bit to get ready and out the door.  But we made it.  And then it was an hour of blood draws and pre-surgical consults with anesthesiologists and doctors and my care team.  I took a quick pic of my new hair net and gorgeous gown for the girls to get a good laugh at, and then we were off down the hall and into the surgical suite.

 Pretty, right?

I slept through much of what happened next. Ok, I slept through it ALL.  Seriously, I was joking with the nurse on second about how cold it was in the room, and the next, I was asking the guy in recovery why my thumb hurt so much.  Truly.  I had just been cut open on my chest, and all I could think of was how much my left thumb hurt.  Turns out, I had many different needles stuck in me while I was sleeping, and a few of them were still in.  The one that was bothering me was an arterial line in my left wrist.  They seem to have hit a nerve (literally), and that is what was bothering me so much.  

I stayed down in recovery for a bit and was finally wheeled to my room with strict orders that I was not to even move my left leg an inch for the next few hours, and I had to lay perfectly flat for the same period.  It seems that I had a central line put in my femoral artery while I was under, and they needed to make sure that it clotted well before moving it around at all.  

Not too bad since I had just been through the wringer.

 My care board.  At least my pain scale was smiley as I was on some good drugs.

Nana called Grampa, and he brought the girls over to say a quick hello before taking them out to dinner.  Stinkerbell was a good nurse and kept feeding me ice chips for my scratchy throat (hate that general anesthesia tube), but MadHatter was a little freaked out about the hospital.  Which is ok, most people don't love them. 

After they had gone, I took a quick snooze and woke up to realize I really had to go to the bathroom.  I don't know what they pump into you while you are under, but it must be a lot of fluid because I had to go, and I had to go now.  I got my care team on the call button and told them the deal.  They had to clear it with my nurse first, as we had just hit the 4 hour flat on our back and not moving point, but the minute they said I could stand, I did.  And then all heck broke loose.  It seems that the clot in my femoral artery wasn't entirely as set as it should have been, and I was trailing blood all over.  Back onto bed rest with no moving for another 12 hours!  Talk about scary and annoying.  At least it was night time, and I could try to sleep.  But if you have ever been in a hospital, you know sleep is elusive.  But I got a few hours and then got to try standing again, and this time everything was as it should be.  Though I will tell you that the bruise from that central line is a doozy!

The first food I had eaten in almost 40 hours.  I have no idea if it was delicious, or I was just hungry.

After that, it was a lot of sit around and watch tv, nap a bit, watch some more tv, stand to go to the bathroom, watch tv, eat some food, watch tv.  The usual hospital routine.  And then I had some sort of crazy reaction to my IV line.  It started to puff up and turn all kinds of shades of red and purple.  Out it came, and so did the one in my other arm along with the bandage that was keeping my other arterial line from rebleeding. I was a giant pincushion, I tell you.


 Finally, I was told I was able to go home!  I couldn't get dressed fast enough.  While Nana went to get the car, I got a VIP ride in a wheelchair to the front door and into the waiting car.



 I was greeted with signs and a few pillows and a blanket on my couch.

The next few days were a blur of sleeping, laying down and watching my bruises turn pretty shades of purple and blue and yellow.  Lots of yellow...


 Pretty.  And painful.


 This was just before I finally got to shower - 4 days after surgery.  My hair should never go 4 days without being washed!

It has been an adventure.  And one I don't wish to repeat any time soon.  Hopefully, these leads stay healthy (my surgeon said the other ones were falling apart as he pulled them out), and we don't have to do this again any time soon.  And let's just pray that the battery gives me another 12 years before we have to replace it!


Bits and Bobs

Tuesday, October 1, 2019

Random things that are interesting, but maybe don't need a full blog post, and happened in September.

She has ALWAYS had this curl naturally.

 Having fun at her school's bookfair.

 They colored cup holders for the Starbucks near the school.  They will be given out to customers until they are all gone.  I don't drink Starbucks but I might just to get one of these!

 Loving her uncle's hat and the Green Bay jersey.  She wore it to school when we got home.

So proud of this one.  Her interim grades for her first semester in Middle School.



The pets lounging in different ways.  Pepper steals Dulce's bed to catch that sunray (even though I tell Dulce she can move her, she never does) and Dulce loves to survey her kingdom outside on the Lanai.

 Gymnastics hands are no joke.  This kid spends many hours a week climbing rope, swinging from bars and generally just abusing her palms.  It shows.  But she loves every second of it.

Trying out the new third lense on my new phone.  Wide angle (left) will make such a huge difference as you can see.

 Carts for miles (yards at least).  Spend a bunch of time in stores this month...

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